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CHAPTER 3:
ADVANCED CARE PLANNING AND LIFE SUSTAINING TREATMENT WHEN VERY ILL

  • Advance Care Planning and Life Sustaining Treatment
  • What to Tell Your Health Care Practitioner
  • Other Helpful Information

All adults should do ADVANCE CARE PLANNING.  Advance Care Planning helps others know what we want from health care when we are too sick to speak for ourselves. If we or someone we have to help become very ill and is likely to die soon we also need to be clear about LIFE SUSTAINING TREATMENTS. Both Advance Care Plans and Orders for Life Sustaining Treatments need to be in writing.

Advance Care Planning and Life Sustaining Treatment

Writing in advance what medical treatments we would or would not if we become too sick to speak for ourselves is extremely important. Writing our wishes enables us to have a voice in medical treatment if we are no longer able to speak for ourselves. They provide information and emotional support to family members who might need to make difficult decisions for us.

The reasons we should think about Advance Care Planning are:

Some of the commonly used treatments that might be necessary sometime in the future and should be talked about are listed below:

Surveys have examined treatment choices of "typical" Americans. (See Table Below). The numbers indicate trends that may be helpful when making our Advance Directive. Of course, what a group answering survey questions favors does not predict what an individual may want. Advance Directives also change as people age and their illnesses change. 

The Table below shows what a large number of adult Americans answered to some questions about what they would want in two situations:1) their current health; or 2) if they had a very severe stroke or had lost their memory.

Treatment Desired "if I am in my current health" "if I had a severe stroke or had lost my memory"
Antibiotics 95% 75%
Short Term            
Breathing Machine
90% 60%
CPR (911) 80% 40%
Dialysis for Kidneys 75% 40%
Feeding Tube 60% 35%
Long Term             Breathing Machine 40% 20%

The important point of the Table is that there is no "right answer." However, thinking about what we want and putting our desires in writing is always better than having someone else guess what we might want.

If we know we are very sick and nearing death, it is very helpful for those we love and the health professionals who take care of us that our wishes about life sustaining treatment are known. In fact, many states in the United States are now asking Physicians to write very clear Orders about Life Sustaining Treatments (so-called POLST). Unlike an Advance Directive (that provides general instructions to a health care representative for our possible future treatments), Orders for Life Sustaining Treatments provide very clear instructions for current treatment. The Table below illustrates the common treatments most of us have to think about and indicate whether we want them or not if: 1) we become sicker, 2) we are so sick we cannot feed ourselves, 3) or our heart stops. 

For these three commons situations that very sick people have to face, do we want a lot of medical treatment or caring treatment to keep us comfortable? For each of the three columns labelled "1,2,3" what choice would we make?.

  1.
If I am much sicker than I am now.
2.
If I am so sick that I cannot feed myself.
3.
If my heart stops or my breathing stops
Do not treat very much Comfort only. Use medicines and good care to keep me comfortable. Do not admit me to a hospital or take me to an emergency room for life sustaining treatments. I never want a feeding tube. No attempt to "bring me back"
Treat some things Limited extra treatment for comfort may be given in a hospital but do not use breathing or other machines to keep me alive. A feeding tube can be used for a clearly defined (limited) time.  
Treat most things Treat me as though I were not nearing death. A long term feeding tube is acceptable to me. Restart my heart and breathing. I understand that this may require machines.


What to tell your Health Care Practitioner

It is difficult to correctly guess when serious illness or death will happen, but we all know that it will happen. Most people know that it is important to tell their health practitioner and family what they would want if they were too sick to speak for themselves.

The following steps are important in planning your Advance Directives:

Other Helpful Information

For additional information:

We have tried to make the How's Your Health error-free. However, those involved in its preparation can not warrant that all of the information is accurate and complete. When you use How's Your Health as a guide for your health and medical care, be sure to discuss any questions about it with your doctor, nurse, or other health care worker.